My interest for the rare disease, epidermolysis bullosa is what is driving my research. I also want to find a better solution for the disease and make the patients feel more comfortable since this disease causes a vast amount of discomfort. It would be an honor to find a cure or even make a minor difference in the sufferers of this disease's lives.
My current essential question is 'how can my mentorship at a medical center develop an effective treatment plan for patients with a rare disease known as Epidermolysis Bullosa?'
In addition to he website, I would like to create a video simulation on how the skin peels and explain the effects that the peeling has on the patient. I would explain the pain that is caused, and how the treatment plan will help.
For my real inquiry I can conduct a survey on patients with epidermolysis bullosa. I can also look through case studies to understand the severity of the disease. In addition, I can look at the foundation websites that are in support of funding epidermolysis bullosa treatment and gather testimonies from the sufferers of this rare disease.